MY

STORY

A rare congenital disease is taking away my sight
My name is Vittoria: a happy and sweet 3 year old girl.

 

I suffer from a rare disease, called Leber Congenital Amaurosis (LCA), a severe
form of retinal dystrophy that progressively leads to blindness. My retina cells
are progressively dying and in few years there will not be any left for me to
see.
I do not see well in the dark. At dim light, I am scared as I do not recognize familiar objects. I cannot see airplanes even if you point them at me. As daunting as it may seem, I do not see and will never see the stars in the sky.

LCA is the primary cause of blindness in children. It affects 2 to 3 in 100.000 children. Those with LCA will typically go completely blind in their late teens
or early twenties. There is currently no cure.